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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Theme: Partnership and Marriage

I wanted Stuart to stand on the cliff with me and he had a different strategy.

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I wanted Stuart to stand on the cliff with me and he had a different strategy.

I wanted Stuart to stand on the cliff with me and he had a different strategy.

The parents of a son with SanFilippo Syndrome discuss their different responses to the diagnosis and coping. It took us a long time and it’s still not always easy. It’s hard because we don’t grieve at the same time and in the same way.

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