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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Partnership and Marriage

We were lucky to always be on the same page.

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We were lucky to always be on the same page.

We were lucky to always be on the same page.

The mom of a daughter with Sanfilippo talks about how she and her husband have done it together, talking, communicating whenever, at any time, about the difficult things — made possible also by their daughter. “Children have such a great way of living today. It helps to live in the day.” No more 5-year plans!

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