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Media Library Navigating Medical Complexity Coping With Loss

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Feeling as a PARENT at home vs Speaking as a professional advocate for my son in the hospital

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Feeling as a PARENT at home vs Speaking as a professional advocate for my son in the hospital

Feeling as a PARENT at home vs Speaking as a professional advocate for my son in the hospital

“Did you ever not just feel like you are more than one person? I was like Jackson’s mom is at home. Jackson’s advocate is here [in the hospital]. Jackson’s mom is a hot mess, and she has a foul mouth and a quick temper. And Jackson’s advocate [with the doctors] is professional, direct, and driven. And this is the person that serves him best.”

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