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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Home > All Videos > Videos: Guilt and Regret

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Theme: Guilt and Regret

During his life, and at his service, I didn’t really want to share Jackson a lot with other people.

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During his life, and at his service, I didn’t really want to share Jackson a lot with other people.

During his life, and at his service, I didn’t really want to share Jackson a lot with other people.

The mom of a boy who died of Krabbe Disease describes the small team of people she invited to his service: his pharmacist, his PT/OT people. “The people who saw us in our home setting.” She grieves the broader community of people he never got to meet but fights the regret and gives herself grace for keeping his world small.

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