The Medical Team: You want a sense of be... You can change your mind re treatment an... I need his life to be good NOW. We knew we wanted him to be home. MD: Parents–Don’t underestimate ...
Post Things I Wish Providers Had Told Me: 7 Lessons Learned Raising my Differently-abled Son Post Being Prepared but Never Ready Post A therapist’s perspective: Supporting your child with a rare and fatal disease. Post A Framework for Medical Decision-Making when a Cure is Not Possible Post Two Hands Post A Most Difficult Decision