Theme: Goals of Care

Slowly realizing there is no way we&#821...

I did not want to isolate him. He loves ...

I was scared of losing him. I was scared...

When he asks to do something, you just w...

I felt like I had a clock ticking down i...

Not once did we think we’d have any re...

Always hoping we can make it a little bi...

I always want parents to know they have ...

Spinal surgery for my son? The most diff...

Something always comes up. You do it aga...

Our pediatrician has been nudging us: �...

It has taken the specialists 11 years to...