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A Rare Diagnosis: “I knew he wasn’t ...
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![Regret re decision-making about interventions: “If we as parents center our child’s experience [not our fear of guilt], with every choice, I don’t see how we can go wrong.”](https://img.youtube.com/vi/3lskDTij76o/maxresdefault.jpg)
Regret re decision-making about interven...
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“It was a journey of contradictions.�...
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Finding the way forward: “Giving her t...
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Evolving as parents: from feeling shocke...
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Dropping the illusion of control: Shifti...
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Clinical Psychology: children don’...
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“We should talk.” Advance Ca...
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Marfan Syndrome: He had 26 doctors and s...
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A cardiac heart failure MD: Having goals...
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A mom: I am finding my own way. I like t...
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Before you order a (swallow) test, ask �...
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Theme: Goals of Care
Finding the way forward: “Giving her the life she was telling us she wanted in a condensed period of time.”
Page: 2 of 7
Finding the way forward: “Giving her the life she was telling us she wanted in a condensed period of time.”
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