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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Home > All Videos > Videos: Goals of Care

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Theme: Goals of Care

Learning to let go of the therapies that weren’t serving him.

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Learning to let go of the therapies that weren’t serving him.

Learning to let go of the therapies that weren’t serving him.

The mother of a boy with complex chronic conditions reflects on how difficult it was for her to recognize that the physical therapies she had been pursuing for her son were now hurting him more than helping him. And her goals had to change from maximizing his strengths to keeping him comfortable. “I had to really look at myself and see why I was doing it and understanding that’s when I began to realize and understand all the feelings that I was having just as far as, again, that grieving aspect of being a mom.”

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