Courageous Parents Network

About

Initiatives

Contact Donate

Search entire library or by microsite

Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Search

Search entire library or by microsite

Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Home > All Videos > Videos: Feeding Tubes

SHARE

Video

Theme: Feeding Tubes

A Mom on deciding about a feeding tube for her child

Page: 1 of 2

A Mom on deciding about a feeding tube for her child

A Mom on deciding about a feeding tube for her child

In this Zoom interview with CPN, Michelle — mother of Alex (age 7) and Julianna, who had a severe form of Charcot-Marie-Tooth disease and died at age 5 — shares how the feeding tube intervention was to help Julianna get nutrition but led to medical complications. Julianna went from the G-Tube to the GJ-Tube.

SHARE

4 / 12

Related Resources