Courageous Parents Network

About

Initiatives

Contact Donate

Search entire library or by microsite

Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Search

Search entire library or by microsite

Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Home > All Videos > Videos: Extended Family and Friends

SHARE

Video

Theme: Extended Family and Friends

My concern was for them as a couple.

Page: 4 of 4

My concern was for them as a couple.

My concern was for them as a couple.

The grandmother of a little girl with Gaucher Type 2 talks about how her biggest concern was for her daughter and her daughter’s husband to stay together and be OK as a couple. She also shares how unnatural it was to say, “My daughter’s daughter is dying,” and not be able to do anything but support her daughter.

SHARE

1 / 6

Related Resources