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Media Library Navigating Medical Complexity Coping With Loss

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Theme: Extended Family and Friends

I did the little things that I could do, like watch Emerson so they could have a date.

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I did the little things that I could do, like watch Emerson so they could have a date.

I did the little things that I could do, like watch Emerson so they could have a date.

A grandmother of a little girl with Gaucher Type 2 shares the ways she found to be helpful without being too involved (aka bossy!) or being able to actually fix the disease. The mother talks about how helpful her mother was with her daughter. “She had a real connection with you.”

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