Theme: Extended Family and Friends

Sharing the news of a genetic diagnosis ...

Support in the home: Having the support ...

Being the Aunt: It wasn’t easy but I w...

Being the Aunt: Staying with his body.

Navigating Friends

Navigating the grandparents: It’s an a...

Mom to Grandma “I remember us talking ...

“I learned you can’t take care of th...

Going to the affected families conferenc...

“I was just a grandmother.”

My mother: “The biggest support sh...

A grandmother on her daughter: “She sa...