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Navigating Medical Complexity Coping With Loss Neurojourney

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Home > End Of Life > Themes

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Theme: End of Life

A mother on the agonizing decision to transition to Hospice Care: “It felt like nobody talks about it.”

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A mother on the agonizing decision to transition to Hospice Care: “It felt like nobody talks about it.”

A mother on the agonizing decision to transition to Hospice Care: “It felt like nobody talks about it.”

The mother of a baby born with a fatal condition describes how alone and unsupported she and her husband felt having to make a ‘choice’ for hospice care for their daughter. She wishes families understood that it can be a graceful decision, an OK decision, the right loving thing.

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