Theme: End of Life

I did go through a brief period after where I wondered if I’d make the right decision.

Page: 5 of 7

I did go through a brief period after where I wondered if I’d make the right decision.

The mom of a son with SanFilippo Syndrome shares that she briefly second-guessed her choice to turn off the machine when her son was intubated at the very end of his life. “But Ben died in the way that he lived. He let us know that he was tired. It was time.” The father shares his realization at the end that Ben was “working so hard to stay with us.”