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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: End of Life

Leaving the hospital after he died: It was unbearable.

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Leaving the hospital after he died: It was unbearable.

Leaving the hospital after he died: It was unbearable.

Parents of a baby son who was born with Arteriovenous Malformation (AVM) talk about how brutal it was to exit into the real world after he died; how isolated and alone they felt; only the people who had been with them in the NICU understood. “It is hard to know what our place is now.”

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