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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: End of Life

Our son’s last day: “We knew we had done everything possible for him. It was right, despite how wrong it was.”

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Our son’s last day: “We knew we had done everything possible for him. It was right, despite how wrong it was.”

Our son’s last day: “We knew we had done everything possible for him. It was right, despite how wrong it was.”

Parents of a baby son who was born with Arteriovenous Malformation (AVM) describe knowing that their son’s body could not go on any longer, that they had done all they could for him, that it was time to let him go, and what that was like … to shut off the monitors, remove equipment, play music for him, and hold him. “It made me feel a little crazy … but it was the most loving thing we could have done. … We knew it was right, despite how wrong it was.”

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