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Navigating Medical Complexity Coping With Loss Neurojourney

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Home > Considering Out Of Home Placement > Themes

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Theme: Considering Out-of-Home Placement

When your community doesn’t understand. “There is a lot of pressure on parents to provide homecare.”

When your community doesn’t understand. “There is a lot of pressure on parents to provide homecare.”

When your community doesn’t understand. “There is a lot of pressure on parents to provide homecare.”

June MSW, LICSW, ACHP-SW, mother of Katie (28), who is medically complex and likely has Rett Syndrome, shares openly the blowback she got when they chose group housing for Katie. “They thought we were giving up on her. I saw it as doing what was best for our family and for Katie.” There is so much pressure for parents to provide homecare and it can be perceived as being about parents’ values or capabilities. For June, it was an evolution that took into consideration the entire family.

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