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Media Library Navigating Medical Complexity Coping With Loss

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Home > All Videos > Videos: Clinical Trial: Informed Consent

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Theme: Clinical Trial: Informed Consent

Clinical Trials: You still need to be an advocate for your child. (CLN2 / Batten)

Clinical Trials: You still need to be an advocate for your child. (CLN2 / Batten)

Clinical Trials: You still need to be an advocate for your child. (CLN2 / Batten)

Parents of two sons, one of whom has CLN2 (Batten disease), offer advice to parents about participating in a trial — know the timeline, advocate for your child and your family. They need us, the child in the trial, as much as we need them, the company delivering the treatment. “We get to speak up.”

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