Theme: Bereavement: The Grief Experience

So much good in the little bit we had. We did the best we could.

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So much good in the little bit we had. We did the best we could.

A couple whose two children died of a rare life-limiting disease within 8 weeks of each other share how they think about the life they gave their children.

Mom: I don’t think you have to be 80 to live a good life, not at all.

Dad: We were focused on how much amazing milestones and — how much fun can these guys have, regardless of any timeline or number.

You can’t ever be fully ready. (Sa...
So much good in the little bit we had. W...
How I’ve been processing my grief.
You don’t owe anyone an explanatio...
Answering the question, “How many ...
He should be 8. I should be at Little Le...
My grief has changed over the years but ...
We didn’t get any counseling or do a s...
It’s another sort of loss.
I’m most proud …
My fear is that I’m not spending enoug...
Time passing is really hard.

Related Resources

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Grief Across the Caregiving Trajectory
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Reflections of Us: "I have had to realize that 15 years was long enough."
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My Children are Not My Children

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Theme: Bereavement: The Grief Experience

So much good in the little bit we had. We did the best we could.

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