Newsletter Signup Contact Donate

Courageous Parents Network

About

Initiatives

Contact Donate Newsletter Signup

Search entire library or by microsite

Media Library

Navigating Medical Complexity Coping With Loss Neurojourney

Search

Search entire library or by microsite

Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Home > Bereavement Maintaining Connection Continuing Bonds > Themes

SHARE

Videos

Theme: Bereavement: Maintaining Connection, Continuing Bonds

I am entirely who I am today because of Ben.

Page: 5 of 5

I am entirely who I am today because of Ben.

I am entirely who I am today because of Ben.

The father of a son with SanFilippo Syndrome share that their son’s legacy isn’t a cure for the disease but how he called his siblings and parents to grow and become wiser and more engaged people. “He gave us way more than we gave him. We got so much out of Ben.”

SHARE

49 / 53

Related Resources