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Navigating Medical Complexity Coping With Loss Neurojourney

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Home > Bereavement Maintaining Connection Continuing Bonds > Themes

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Theme: Bereavement: Maintaining Connection, Continuing Bonds

Rituals and anniversaries – How we remember Jack.

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Rituals and anniversaries – How we remember Jack.

Rituals and anniversaries – How we remember Jack.

Sandy, mother of Jack and Ben. Jack was diagnosed with the rare blood disease Kohlmeier-Degos and died 15 years ago at the age of 5 – only 9 months after his diagnosis. Most of his life was spent in the ICU. The experience was traumatic. Here Sandy shares how her family celebrates his birthday and anniversary of his death – balloons, beach, beef.

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