Newsletter Signup Contact Donate

Courageous Parents Network

About

Initiatives

Contact Donate Newsletter Signup

Search entire library or by microsite

Media Library

Navigating Medical Complexity Coping With Loss Neurojourney

Search

Search entire library or by microsite

Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Home > Bereavement Maintaining Connection Continuing Bonds > Themes

SHARE

Videos

Theme: Bereavement: Maintaining Connection, Continuing Bonds

Rituals and anniversaries – How we remember Jack.

Page: 3 of 5

Rituals and anniversaries – How we remember Jack.

Rituals and anniversaries – How we remember Jack.

Sandy, mother of Jack and Ben. Jack was diagnosed with the rare blood disease Kohlmeier-Degos and died 15 years ago at the age of 5 – only 9 months after his diagnosis. Most of his life was spent in the ICU. The experience was traumatic. Here Sandy shares how her family celebrates his birthday and anniversary of his death – balloons, beach, beef.

SHARE

25 / 53

Related Resources