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Navigating Medical Complexity Coping With Loss Neurojourney

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Home > Bereavement Maintaining Connection Continuing Bonds > Themes

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Theme: Bereavement: Maintaining Connection, Continuing Bonds

A mom on grief in bereavement: “I hope to be myself again.”

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A mom on grief in bereavement: “I hope to be myself again.”

A mom on grief in bereavement: “I hope to be myself again.”

A bereaved mother speaks courageously about how she has sought and found support following the death of her son. There are things she did early on — “I was taking it hour by hour” — and challenges she gave herself to make sure Krabbe disease didn’t take even more from her, such as buying baby presents for friends. “I grant myself grace…. I still want to make Jackson proud, so he will never have a mom that quits. … If I’m here, it has to count.”

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