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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Home > All Videos > Videos: Advocating for your child

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Theme: Advocating for your child

Now they say, “Whatever you say, Mom.”

Page: 8 of 9

Now they say, “Whatever you say, Mom.”

Now they say, “Whatever you say, Mom.”

I have perfected it over the years. The docs now know I know my son best. The kind of meds he’s on are not typical for a homebound child, and they have learned to trust that I have it right. I see him at home all day. They only see him a tiny bit when he comes in. The mom of a medically complex son with Mito talks about the rapport she’s built with the doctors at the hospital where she has spent A LOT of time.

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