Theme: Advance Care Planning

Avoiding a traumatic medical death: Learning our baby could not tolerate intubation and deciding he would not have it again.

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Avoiding a traumatic medical death: Learning our baby could not tolerate intubation and deciding he would not have it again.

The parents of a son with a very rare genetic condition recount an experience with intubation that was extremely painful but also incredibly informative as they faced the final days of their son’s life and chose to put his comfort and peace first when they made the decision not to re-intubate him.