For so many parents and caregivers caring for children living with illness and medical complexity, the stress and burden of caregiving can be overwhelming. Practicing self-compassion can help us shift out of survival mode, allowing us to better deal with challenges and grow our emotional resilience. Within this guide, you will find some great tips on the benefits of self-compassion and ways to practice self-compassion which can enhance your well-being and capacity to be the caregiver.

The aunts and uncles of a little girl, Havi, who moved to be close to the family and lived together following her diagnosis with Tay-Sachs, talk about how they made it work. Boundaries, finding FULLness, tending to their respective marriages.

The aunt of a little girl, Havi, who died from Tay-Sachs, talks about how loving on Havi and her parents was a gift she gave herself; and on how she is finding ways to keep loving and giving following Havi’s death.