Advance Care Planning and End of Life

Considering your child’s end of life may feel like an impossible prospect, but many parents and caregivers do address this possibility as early as the initial diagnosis. While hope is always a part of the care plan, that hope can change shape as conditions and/or prognosis shifts. There are obviously no guarantees that things will happen in a predictable fashion; the goal is simply to have an idea of what may lie ahead and to consider how you are likely to respond.