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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

12 resources found

Pain Clear All

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Pain

12 resources found

Every parent wants their child to live no matter what; but at what cost?

Every parent wants their child to live no matter what; but at what cost?

What can parents do if they feel their child’s pain is not being understood by clinicians?

What can parents do if they feel their child’s pain is not being understood by clinicians?

Extubating my son: “My heart wanted a few more years but he was so tired and I had to accept that. I didn’t want him to suffer anymore.”

Extubating my son: “My heart wanted a few more years but he was so tired and I had to accept that. I didn�...

How palliative care looks in oncology: example 2, pain and nausea management

How palliative care looks in oncology: example 2, pain and nausea management

Osteosarcoma in an adolescent and ‘Total Pain’: There were all these compounding issues

Osteosarcoma in an adolescent and ‘Total Pain’: There were all these compounding issues

A palliative care MD: “We need to try to understand what the parent’s motivation is; and not shy away from pain.”

A palliative care MD: “We need to try to understand what the parent’s motivation is; and not shy awa...

A Safe Haven and a Launching Pad

A Safe Haven and a Launching Pad

Managing Pain in Children with Complex Chronic Conditions

Managing Pain in Children with Complex Chronic Conditions

Parenting a Medically Complex Child: My son’s peaceful end-of-life

Parenting a Medically Complex Child: My son’s peaceful end-of-life

Preparing for medical procedures through play.

Preparing for medical procedures through play.

It was like this little secret society.

It was like this little secret society.

I need his life to be good NOW.

I need his life to be good NOW.