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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

22 resources found

Feeding-tubes Clear All

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Navigating Decisions Surrounding Feeding Intolerance

Navigating Decisions Surrounding Feeding Intolerance

How Food Brought Joy to My Daughter Even When She Could No Longer Eat

How Food Brought Joy to My Daughter Even When She Could No Longer Eat

When it’s harder than it should be: Navigating the emotional toll of your child’s feeding challenges

When it’s harder than it should be: Navigating the emotional toll of your child’s feeding challenges

There is no road map when the diagnosis is so rare.

There is no road map when the diagnosis is so rare.

The feeding tube and palliative care

The feeding tube and palliative care

Before you order a (swallow) test, ask “Why are we getting this test? And how will it help us move forward?”

Before you order a (swallow) test, ask “Why are we getting this test? And how will it help us move forward...

A Mom on deciding about a feeding tube for her child

A Mom on deciding about a feeding tube for her child

What is Tube Feeding?

What is Tube Feeding?

I had never met anyone whose child had a G-tube. I felt so isolated but I had to decide.

I had never met anyone whose child had a G-tube. I felt so isolated but I had to decide.

A feeding tube: Other parents gave us permission to make our own decision

A feeding tube: Other parents gave us permission to make our own decision

Parenting a Medically Complex Child: Decision Making Re Tubes and Surgeries

Parenting a Medically Complex Child: Decision Making Re Tubes and Surgeries

A Guide to Understanding Your Child’s Nutritional Needs Throughout Illness and at End of Life

A Guide to Understanding Your Child’s Nutritional Needs Throughout Illness and at End of Life