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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

127 resources found

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127 resources found

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Here is how you can help me feel that I’m doing a really good job caring for my child.

Here is how you can help me feel that I’m doing a really good job caring for my child.

An NP in the PICU: “My experience with angry parents suggests the anger stems from grief or not feeling heard.”

An NP in the PICU: “My experience with angry parents suggests the anger stems from grief or not feeling he...

An NP in the PICU: It’s really important to go in to a family meeting with no assumptions … and that is really hard to do.”

An NP in the PICU: It’s really important to go in to a family meeting with no assumptions … and that is ...

An NP in the PICU: “I think the biggest challenge for parents is being and feeling understood.”

An NP in the PICU: “I think the biggest challenge for parents is being and feeling understood.”

An NP in the PICU: “We often see that feeling of failing, for the parents.”

An NP in the PICU: “We often see that feeling of failing, for the parents.”

A PICU NP on appreciating the minute communications between the child and the parent.

A PICU NP on appreciating the minute communications between the child and the parent.

Evolving as parents: from feeling shocked and vulnerable to trusting intuitions about what our child wants

Evolving as parents: from feeling shocked and vulnerable to trusting intuitions about what our child wants

Esté Preparado/a En Caso de Emergencia

Esté Preparado/a En Caso de Emergencia

September is Childhood Cancer Awareness Month; CPN Welcomes Our Newest Blogger in Residence

September is Childhood Cancer Awareness Month; CPN Welcomes Our Newest Blogger in Residence

Tips for providers: assess the scene; don’t just start talking; begin with the child

Tips for providers: assess the scene; don’t just start talking; begin with the child

“I internalized that to be competent meant not to cry; You do what you think is needed to get good care for your child.”

“I internalized that to be competent meant not to cry; You do what you think is needed to get good care fo...

I convinced myself my job was to be competent. I was ‘at the table’ and it was a lot of pressure. It took a toll.

I convinced myself my job was to be competent. I was ‘at the table’ and it was a lot of pressure. It too...

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