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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

32 resources found

Guilt-and-regret Clear All

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32 resources found

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Considering the Protective Power of Rage

Considering the Protective Power of Rage

A genetic diagnosis: I had to get over the guilt of feeling “is this my fault?”

A genetic diagnosis: I had to get over the guilt of feeling “is this my fault?”

An Evolving Definition of What It Means to Be a “Good” Parent

An Evolving Definition of What It Means to Be a “Good” Parent

Worrying about past decisions, the past, does have an effect on your body. … Yoga just felt good to me.

Worrying about past decisions, the past, does have an effect on your body. … Yoga just felt good to me.

Two brothers with cardiomyopathy– one dies unexpectedly at home; keeping the medical team

Two brothers with cardiomyopathy– one dies unexpectedly at home; keeping the medical team

Parenting a Medically Complex Child: Shifting my expectations for his life

Parenting a Medically Complex Child: Shifting my expectations for his life

Pediatric Disease: My Genes, My Guilt.

Pediatric Disease: My Genes, My Guilt.

No one wants to feel like they’re ‘giving up’ on their child.

No one wants to feel like they’re ‘giving up’ on their child.

I did feel a sense of relief after the kids died. They were so sick.

I did feel a sense of relief after the kids died. They were so sick.

Photos help remind me that we made the right choice.

Photos help remind me that we made the right choice.

I felt like I had a clock ticking down in my head.

I felt like I had a clock ticking down in my head.

Not once did we think we’d have any regrets.

Not once did we think we’d have any regrets.