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Navigating Medical Complexity Coping With Loss Neurojourney

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Media Library Navigating Medical Complexity Coping With Loss

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Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

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Page: 158 of 178

They gave us the strength to say YES to what needed to be done.

They gave us the strength to say YES to what needed to be done.

Pediatric cancer means that we give these children medicines that are just so damaging.

Pediatric cancer means that we give these children medicines that are just so damaging.

Decision-Making: We created a space where we examined what the Next Steps are.

Decision-Making: We created a space where we examined what the Next Steps are.

Palliative care helps reframe interventions like feeding tubes.

Palliative care helps reframe interventions like feeding tubes.

Re feeding tubes: It’s about asking the right questions.

Re feeding tubes: It’s about asking the right questions.

Medical Order forms: Do Not Resuscitate, Allow Natural Death

Medical Order forms: Do Not Resuscitate, Allow Natural Death

Palliative care gave us a language to talk to the medical specialists.

Palliative care gave us a language to talk to the medical specialists.

For each intervention, we asked, “Is this going to benefit his quality of life or our family’s quality of life?”

For each intervention, we asked, “Is this going to benefit his quality of life or our family’s quality o...

Palliative care fills a huge hole that comes from having a medically complex kid.

Palliative care fills a huge hole that comes from having a medically complex kid.

Parents worry they’re going to have regrets, but if it’s the right decision …

Parents worry they’re going to have regrets, but if it’s the right decision …

Educating parents about the Pros and Cons of the decisions can help with their regrets

Educating parents about the Pros and Cons of the decisions can help with their regrets

Am I going to be able to go on?

Am I going to be able to go on?

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