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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

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1316 resources found

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David’s reaction to his cancer at 10 when very different than his reaction when he relapsed at 14.

David’s reaction to his cancer at 10 when very different than his reaction when he relapsed at 14.

Bereaved parents fund nursing education to promote serious illness conversations.

Bereaved parents fund nursing education to promote serious illness conversations.

Pediatric cancer: My teenage son was going through spiritual distress; he had questions about his mortality.

Pediatric cancer: My teenage son was going through spiritual distress; he had questions about his mortality.

Pediatric cancer: making the decision to stop treatment is the hardest decision a parent will make in their whole life.

Pediatric cancer: making the decision to stop treatment is the hardest decision a parent will make in their ...

Every parent wants their child to live no matter what; but at what cost?

Every parent wants their child to live no matter what; but at what cost?

Writing the book- Living Well with a Serious Illness

Writing the book- Living Well with a Serious Illness

Health Equity work is like a spiritual calling for me.

Health Equity work is like a spiritual calling for me.

Health equity work: We have to start with ourselves and recognize that we all hold ‘isms.’

Health equity work: We have to start with ourselves and recognize that we all hold ‘isms.’

Gravitating towards the familiar in identity: “As clinicians, we may not even recognize that we’re treating these two families different.”

Gravitating towards the familiar in identity: “As clinicians, we may not even recognize that we’re treat...

“To do health equity work, we have to be comfortable with being uncomfortable… and that’s hard in systems where we’re expected to be experts.”

“To do health equity work, we have to be comfortable with being uncomfortable… and that’s hard in syst...

It’s not a family’s responsibility that we be comfortable as clinicians.

It’s not a family’s responsibility that we be comfortable as clinicians.

A diagnosis in-utero of Trisomy 18: Being told, Don’t get too attached. He is going to die. We wanted a different conversation.

A diagnosis in-utero of Trisomy 18: Being told, Don’t get too attached. He is going to die. We wanted a di...

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