Courageous Parents Network

About

Initiatives

Contact Donate

Search entire library or by microsite

Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Search

Search entire library or by microsite

Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Explore the Library

Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

2146 resources found

Clear All

Sort By

Filters:

Sort by:

2146 resources found

Page: 3 of 179

Upcoming: In the Room: Unlocking Answers: What Every Parent Should Know About Genetic Testing

Upcoming: In the Room: Unlocking Answers: What Every Parent Should Know About Genetic Testing

In the Room: Navigating the Space Between Adjustment and Acceptance in the Context of a Genetic Diagnosis

In the Room: Navigating the Space Between Adjustment and Acceptance in the Context of a Genetic Diagnosis

Pediatric Palliative Care: A Father’s Perspective

Pediatric Palliative Care: A Father’s Perspective

Identifying and Supporting Unspoken Tolls

Identifying and Supporting Unspoken Tolls

A Care Conference is Not Just a Meeting

A Care Conference is Not Just a Meeting

Between Here and Nowhere

Between Here and Nowhere

Families need help navigating this health care system.

Families need help navigating this health care system.

Good adequate care should encompass what happens once the children come home from the hospital.

Good adequate care should encompass what happens once the children come home from the hospital.

A Mom: The focus is on the baby, but what about strengthening the mom and the dad? … Families need to feel empowered to ask for what they need.

A Mom: The focus is on the baby, but what about strengthening the mom and the dad? … Families need to feel...

The death of a child and a husband, and now solo parenting: “I’ve learned to live life with grief.”

The death of a child and a husband, and now solo parenting: “I’ve learned to live life with grief.”

Decision-making in the NICU: When the mom and dad are thinking at different scales of time

Decision-making in the NICU: When the mom and dad are thinking at different scales of time

The best advice I got as a NICU Mom: Push aside all the predictions, love him and give him the necessary tools. But that’s a lot of work.

The best advice I got as a NICU Mom: Push aside all the predictions, love him and give him the necessary too...