For more than a decade, pediatric palliative care researchers have explored how parents of children with serious illness think about their role and what it means to be a “good parent.” It is important to note that the term “good parent” is not a judgment from clinicians. The term originated from parents of children in treatment for illness. Across studies, parents describe the “good parent” ideal as something they strive toward, not as a judgment or a measure of failure.
This Guide draws on that research along with the lived experiences of families and clinicians in the Courageous Parents Network community. While every family’s journey is unique and cannot be fully normalized, the goal of this Guide is to offer insight, encouragement, and a sense of connection—helping parents reflect on their own values and find strength and support along the way.