For more than a decade, pediatric palliative care researchers have explored how parents of children with serious illness understand their role and define what it means to be a “good parent”—a term that originated from parents themselves, not as a clinical judgment, but as an ideal they strive toward rather than a measure of success or failure. This Guide draws on that research alongside the lived experiences of families and clinicians in the Courageous Parents Network community to offer insight, encouragement, and a sense of connection, helping parents reflect on their own values and find strength and support along their unique journey.
There’s also a magazine-style version of this guide that you can browse.
Click here to view it in that format.