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Not sure where to start?
Explore CPN Core Concepts
Learn More
Core Concepts
The Beginning
Advocating for Your Child
Understanding Interventions
Coping, Family and Relationships
End of Life and Bereavement
Explore
Not sure where to start?
Explore CPN Core Concepts
Learn More
Video Library
Audio Library
Guides
Pathways
Blog
Featured Family
Units
Diagnoses
Events
About
Not sure where to start?
Explore CPN Core Concepts
Learn More
Our Origin
Donors
Annual Report
Parent Champions
Speaking Engagements
Staff and Board
Mobile App
Contribute a Blog
Collaborations and Co-Authorship in Research
Medical Advisory Board
The Ilene Beal and Margaret S Lindsay Courageous Provider Awards (2024 Announcement)
Talk to CPN
En Español
Clinicians/Educators
NeuroJourney
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TOP LISTS
Top Lists
Top 8 Things to Understand About Anticipatory Grief
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8 Tips to Communicate Effectively & Compassionately to Help Siblings Cope
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10 Things to Consider About Clinical Trials
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7 Things You May Not Know About Palliative Care
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7 Things to Know About Traveling with a Medically Complex Child
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8 Tips on How (and How Not) to Show Up
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7 Things to Understand About Regret
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6 Tips to Help You Cope with Holidays and Special Days
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8 Things to Understand When it Comes to Spirituality and Caregiving in Pediatric Illness
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9 Things to Understand About Baseline
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Top 10 Things to Know About Navigating the In-Patient Hospital Experience
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8 Things to Know About Goals of Care
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5 Things to Consider as you Build your Medical Team
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Understanding Shared Decision Making
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Can we help you:
Advocate for your child
Strengthen family and other relationships
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A Guide to Getting Started with Systems of Care
Introducing NeuroJourney to Families
When You and Your Child’s Clinicians Have Different Ideas or Styles: How To Find a Way Forward
Framework for Sharing Decision-Making with Your Child’s Clinicians
A Guide to Being Your Own Best Ally
Perinatal Palliative Care Pathways: Options for Caregivers to Consider
How to Find a Therapist
Assessing and Responding to the Spiritual Needs of Seriously Ill Children and Their Caregivers
7 Things Your Patient Family Would Like You to Know
6 Things Primary Care Clinicians Can Do to Support Children with Complex Medical Needs
Spirituality and Caregiving in Pediatric Illness
Supporting Families in Bereavement
What is Anticipatory Grief?
Travel Guide
Anticipatory Symptom Management Plan
Introducing Families to CPN
Introducing Families to Palliative Care
Supporting Families in Advance Care Planning
Delivering the Diagnosis or Bad News
Shared Decision-Making
JJ - a Day in the Life
Understanding the Lived Family Experience
The Pediatrician’s Role in Serious Illness
Intro to Financial Planning & A Letter of Intent (template)
Introduction to Pediatric Palliative Care
Understanding Palliative Care and Hospice Care
CPN FAQ Sheet
In Case of an Emergency ... here is what others need to know about my child's care.
Care Plan Book
Navigating the Hospital
Considering a Port for Your Child
Considering the Clinical Trial Option
Understanding Baseline
Family Meeting: Being Prepared
Communicating Effectively and Compassionately to Help Siblings Cope
Strengthening Your Parenting Partnership
Self Care: A Parent's Guide to Taking Care of Yourself (as well as Your Child)
For Grandparents and Extended Family of Children with Serious Illness
Managing Pain in Children with Complex Chronic Conditions
Medical Orders
Exploring Integrative Therapies
Scoliosis and Spine / Spinal Surgery: Facts and Decision-Making
What is Tube Feeding?
Considering Tracheostomy
Evaluating the Clinical Trial Option: A guide to CPN Resources
Clinical Trial Unit: Questions to Consider
Glossary: Understanding Clinical Trial Terms
Guide to Informed Consent
Planning Transition from Pediatric to Adult Providers for the Fully-Dependent Child
Exploring Out-of-Home Placement
Considerations for Guardianship & Medical Decision-Making
End-of-Life Guide Part 1: Preparing
End-of-Life Guide Part 2: What to Expect
Understanding and Managing Nutritional Needs at End of Life
Guide to Continuing Bonds for Bereaved Parents
5 Packaged Teaching Modules: Being a Good Parent, Supporting Siblings, Talking About the End of Life, Making Difficult Decisions, and Palliative Care
Referral Script
Making Critical Care Choices: A Guide
Facing End of Life Bibliography
Bereavement Bibliography
Bereavement Bibliography
Bereavement Websites and Camps
Parenting the Surviving Siblings
Guide for Writing as Healing
Printable CPN Info Sheet
Guide to CPN's Family Voices
Guide to CPN's Clinician Voices
