Facing End of Life Bibliography
This guide includes books that are helpful for parents anticipating the death of their child as well as life cycle books for children to read.
Can we help you:
- A Guide to Getting Started with Systems of Care
- Introducing NeuroJourney to Families
- When You and Your Child’s Clinicians Have Different Ideas or Styles: How To Find a Way Forward
- Framework for Sharing Decision-Making with Your Child’s Clinicians
- A Guide to Being Your Own Best Ally
- Perinatal Palliative Care Pathways: Options for Caregivers to Consider
- Improving the Pediatric Cancer Care Experience with Palliative Support
- How to Find a Therapist
- Assessing and Responding to the Spiritual Needs of Seriously Ill Children and Their Caregivers
- 7 Things Your Patient Family Would Like You to Know
- 6 Things Primary Care Clinicians Can Do to Support Children with Complex Medical Needs
- Spirituality and Caregiving in Pediatric Illness
- Top Lists
- Supporting Families in Bereavement
- What is Anticipatory Grief?
- Travel Guide
- Anticipatory Symptom Management Plan
- Introducing Families to CPN
- Introducing Families to Palliative Care
- Supporting Families in Advance Care Planning
- Delivering the Diagnosis or Bad News
- Shared Decision-Making
- JJ - a Day in the Life
- Understanding the Lived Family Experience
- The Pediatrician’s Role in Serious Illness
- Intro to Financial Planning & A Letter of Intent (template)
- Introduction to Pediatric Palliative Care
- Understanding Palliative Care and Hospice Care
- CPN FAQ Sheet
- In Case of an Emergency ... here is what others need to know about my child's care.
- Care Plan Book
- Navigating the Hospital
- Considering a Port for Your Child
- Considering the Clinical Trial Option
- Understanding Baseline
- Family Meeting: Being Prepared
- Communicating Effectively and Compassionately to Help Siblings Cope
- Strengthening Your Parenting Partnership
- Self Care: A Parent's Guide to Taking Care of Yourself (as well as Your Child)
- For Grandparents and Extended Family of Children with Serious Illness
- Managing Pain in Children with Complex Chronic Conditions
- Medical Orders
- Exploring Integrative Therapies
- Scoliosis and Spine / Spinal Surgery: Facts and Decision-Making
- What is Tube Feeding?
- Considering Tracheostomy
- Evaluating the Clinical Trial Option: A guide to CPN Resources
- Clinical Trial Unit: Questions to Consider
- Glossary: Understanding Clinical Trial Terms
- Guide to Informed Consent
- Planning Transition from Pediatric to Adult Providers for the Fully-Dependent Child
- Exploring Out-of-Home Placement
- Considerations for Guardianship & Medical Decision-Making
- End-of-Life Guide Part 1: Preparing
- End-of-Life Guide Part 2: What to Expect
- Understanding and Managing Nutritional Needs at End of Life
- Guide to Continuing Bonds for Bereaved Parents
- 5 Packaged Teaching Modules: Being a Good Parent, Supporting Siblings, Talking About the End of Life, Making Difficult Decisions, and Palliative Care
- Referral Script
- Making Critical Care Choices: A Guide
- Bereavement Bibliography
- Bereavement Bibliography
- Bereavement Websites and Camps
- Parenting the Surviving Siblings
- Guide for Writing as Healing
- Printable CPN Info Sheet
- Guide to CPN's Family Voices
- Guide to CPN's Clinician Voices