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Rare disease in children: Voices of the ...
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Follow up with Sherri: Rachel is now thr...
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Jessica, on being Rachel's big sister. R...
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It’s tough to talk about end-of-life p...
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It has taken the specialists 11 years to...
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God gives me the strength to keep carryi...
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You may not appreciate it now, but when ...
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What would Rachel say to Jessica if she ...
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She told me how important it is to know ...
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Being their mom is a joyful thing.
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If the child is asking the question, it�...
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She wanted to have a normal typical worl...
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We postponed Make-a-Wish until Jessica w...
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Jessica has asked, “Will I have to tak...
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We talk about what things would be like ...
Family Video Collection
Sherri
Mother of Rachel. Rachel has Canavan disease and at the time of this interview was 16 and Jessica was 17. They are now 19 and 20 respectively.

Rare disease in children: Voices of the Siblings
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