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Family Video Collection

Sandy C

Sandy, mother of Jack and Ben. Jack was diagnosed with the rare blood disease Kohlmeier-Degos and died 15 years ago at the age of 5 – only 9 months after his diagnosis, most of which was spent in the ICU.

Sandy, mother of Jack and Ben. Jack was diagnosed with the rare blood disease Kohlmeier-Degos and died 15 years ago at the age of 5 – only 9 months after his diagnosis, most of which was spent in the ICU. 

Processing the grief: I needed a narrative. It was helpful to go through the medical records, make sense of what had happened.

Processing the grief: I needed a narrative. It was helpful to go through the medical records, make sense of what had happened.

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