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“Because Joey lived for two weeks, we ...
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The anxiety about having more children. ...
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Grief: “Have grace with your spouse.�...
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Finding support: “Our faith community ...
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“I would be lying if I said it didn’...
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Our newborn’s end of life: “his life...
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“It was very weird to have a newborn w...
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“We didn’t think we would leave the ...
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Perinatal palliative care “got to know...
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Decision-making about quality of life, w...
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Considering the option of terminating th...
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A diagnosis in-utero of holoprosencephal...
Family Video Collection
Nate and Katherine
Katherine and Nate, parents of Joey and younger son Benjamin (3). Joey was diagnosed in-utero with severe holoprosencephaly (brain malformation) and died 2 weeks after birth.
Katherine and Nate, parents of Joey and younger son Benjamin (3). Joey was diagnosed in-utero with severe holoprosencephaly (brain malformation) and died 2 weeks after birth.

“Because Joey lived for two weeks, we spend those two weeks (with his little brother) celebrating his life.”
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