Michelle M

Michelle, mother of Alex (age 7) and Julianna. Julianna had a severe form of Charcot-Marie-Tooth disease and died at age 5.

One day you are going to be that person for someone else.

In this Zoom interview with CPN, Michelle — mother of Alex (age 7) and Julianna, who had a severe form of Charcot-Marie-Tooth disease and died at age 5 — talks about what a difference fellow parents and providers have made. “I guess I’d rather not know you but it’s really amazing, the people you meet and how they can help you; and then one day you are going to be that person for someone else, right?