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Message to parents: Trust your intuition...
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The little sister’s footsteps bring jo...
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For the little sister Kaia: “We’re g...
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Preparing for her End of Life as a Coupl...
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Writing as healing, during her life and ...
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Bereavement: Outside people are afraid o...
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Work: We had to explicitly educate and c...
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Finding support for just the three of us...
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Havi’s posse just showed up, and it wa...
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Finding the way forward: “Giving her t...
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Evolving as parents: from feeling shocke...
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Dropping the illusion of control: Shifti...
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The diagnostic odyssey to Tay-Sachs
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Becoming parents for the first time: Exp...
Family Video Collection
Matt and Myra
Parents of Havi and Kaia. Kaia is 21 months old and big sister Havi died at age 2 from infantile Tay-Sachs disease.
Parents of Havi and Kaia. Kaia is 21 months old and big sister Havi died at age 2 from infantile Tay-Sachs disease.
Message to parents: Trust your intuition. Message to clinicians: Listen to what the child and parents want and do whatever you can to make that happen.
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