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Rare disease in children: Voices of the ...
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Helping Siblings Cope, From the Parents
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Our pediatrician has been nudging us: �...
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On the one hand you want them to stay wi...
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I’m like, I don’t need a bucket list...
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Finding support in God, family, provider...
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This has given me a lot of hope for huma...
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Don’t hesitate to say, Somebody help u...
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The benefit and blessing of going day-to...
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We don’t know the end of the story but...
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MD: Parents--Don’t underestimate the i...
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As a parent, you know instinctively in y...
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It really does put your faith to the tes...
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I find my faith in community.
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We go see someone. It’s not marriage t...
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We tell them this is going to be a tough...
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If you’re paying attention, you’ll s...
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It’s a juggling act.
Family Video Collection
LJ and Catherine
Parents of Rachel, who has leukodystrophy, age 22-months, and siblings Alex, Caitlyn, Joshua, Abigail, Simeon, and Michael

Rare disease in children: Voices of the Siblings
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