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Checking in with Lars and Elizabeth
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Now I understand what palliative care is...
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When you start talking, they start shari...
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I can’t handle the negativity of some ...
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When I feel myself spiral downward, I ha...
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You get to the point where this just Is ...
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I choose to look at the bright side of l...
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The lack of diagnosis frustrates me. I�...
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I can only think out a few years.
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What gets to me is all the medical appoi...
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What I’ve learned from this …
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You have to have a sense of humor.
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The medical machine is not very humanist...
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You definitely keep me sane.
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Elizabeth likes to talk things out. It�...
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They’ve been exposed to so many differ...
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They think of her just as a cute little ...
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Living in the Present - they can't be ex...
Family Video Collection
Lars and Elizabeth
Parents of Adelaide, age 3 with ‘shrinking white matter’ disease, and Charlotte (8) and Levi (6). At the time of this interview, Adelaide was age 3. She is now 5 years old.
Checking in with Lars and Elizabeth
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