Kate

Mother of Brooke and older son Jake. Brooke had infantile Tay-Sachs and at the time of this interview was age 3. She has since passed away.

Everyone has their stuff.

A mom talks about how normal it is that she should care for her child who is so medically complicated and is dying. “For me it became our new normal.” She shares that it also takes a toll and how she’s tired, irritable, and isn’t yet the changed, patient parent that people think she must be.