Family Video Collection
Jordan and Julia
Parents of Caleb, Avery and Nolan.
Avery had Early Infantile Epileptic Encephalopathy as a result of a mutation in her UBA5 gene. She died at age 2 months.
“How we perceive her life can change with time. … It’s such a brief life but it continues in this way.”
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![“I really appreciated the child-life specialist who guided us [through end-of-life for our older son.]”](https://img.youtube.com/vi/VI4wyRe9SLY/maxresdefault.jpg)
