-
Writing as Healing: A Conversation with ...
-
Spinal Fusion Surgery: Creating a space ...
-
Palliative Care Helps with Difficult Dec...
-
I’m not ready but Ben is.
-
Try to hold on to the good things that h...
-
I am entirely who I am today because of ...
-
Decision-Making: We created a space wher...
-
Palliative care helps reframe interventi...
-
Re feeding tubes: It's about asking the...
-
Medical Order forms: Do Not Resuscitate,...
-
Palliative care gave us a language to ta...
-
For each intervention, we asked, “Is t...
-
Palliative care fills a huge hole that c...
-
The last 24 hours: We were not ready for...
-
I did go through a brief period after wh...
-
Fundraising for Research: I was transpor...
-
Families aren't ready for all the inform...
-
One day, I just stopped thinking about i...
-
Ben brought us this huge support network...
-
We put our heart out there and they shar...
-
I wanted Stuart to stand on the cliff wi...
-
This isn’t happening to them, it’s h...
Family Video Collection
Jennifer and Stuart
Jennifer and Stuart, parents of Ben, who had Sanfilippo Syndrome and died at age 17, and siblings Noah and Isabelle.

Writing as Healing: A Conversation with Two Siblings.
SHARE