-
When he wants to do something, you just ...
-
Spinal Fusion Surgery: Deciding to do it
-
Alex's siblings, Zach and Zoe
-
Reach out to other families, they’re o...
-
I want parents to know to be empowered.
-
Christian music just really helps me to ...
-
I’m going to keep moving forward.
-
Deciding to do the spinal surgery.
-
He's doing great. He's fantastic, even i...
-
We’ve had some scary moments with the ...
-
You have to try to do what’s best for ...
-
You can still find a place for the vent ...
-
Moving through the initial scariness, yo...
-
When he asks to do something, you just w...
-
I wonder if I project my own feelings on...
-
I felt like I had a clock ticking down i...
-
I did not want to isolate him. He loves ...
-
You have to make a decision and they’r...
-
I was scared of losing him. I was scared...
-
So I started questioning …. And it was...
-
Two families, Two Paths
-
They're still learning about the progres...
Family Video Collection
Jenessa
Jenessa, mother of Zach (15), Alex (12) and Zoe (9). Alex has SMA Type 1.

When he wants to do something, you just want to move heaven and earth.
SHARE