Greg and Heidi

Parents of Abby, age 5, and Tomas, age 4. Abby has Leigh’s Disease, a rare and life-limiting form of mitochondrial disease. Abby is receiving an experimental therapy.

Finding an experimental trial, study drug.

The mother and father of a 5-year old with Leigh’s Disease, a mitochondrial condition, talk about they did loads of research online, on their own, including Google Alerts, and learned about an experimental trial. “We had to educate ourselves in order to provide the best for our child.”