Frank and Jeanette

What are you most proud of about your tw...

“I would like clinicians to know that ...

Getting Guardianship with DNR Rights: A ...

A parenting journey like this “tests a...

“You have to adapt. You have to learn ...

Parents on the burden of chronic caregiv...

“I can’t save my son but I can make ...

“CPN has been like a therapist for my ...

Being my son’s advocate: I can spend a...

Mom: I know that he has completed everyt...

Frankie: He was the life of the party; l...

Frankie: Losing his voice but still comm...