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My fear is that I’m not spending enoug...
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We weren’t going back to the hospital.
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Stopping curative medication.
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I was worried about the empty crib.
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A couple disagrees on open or closed cas...
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When there isn’t more treatment to be ...
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I wasn’t afraid because I’m a planne...
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The last hour of Talon's life, and letti...
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Pros and Cons of Social Media
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The Medical Team: You want a sense of be...
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We knew we wanted him to be home.
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For many people it’s a huge crisis of ...
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The division of labor is really importan...
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Our son’s strength put us in our place...
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Always give them a sense of what’s goi...
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We never treated our son like he was sic...
Family Video Collection
Chad and Kristina
Parents of Talon, who had a peroxisomal disorder and died shortly before his 2nd birthday, and older brothers Benjamin and Nicholas

My fear is that I’m not spending enough time visiting him.
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